Vaccine #6 and all is well


I’m sorry for the delay in posting news about David. My first update is usually on Facebook because that is easier to use on my phone. I kept hoping to have some time in front of my computer to update this blog, but who knows when that will happen. So this update is coming via an airport and my iPhone. Please excise any typos.

David had an MRI at this past visit. We took him this time, and Mark met us at the hospital the next morning for results. The doctor was very pleased to report no tumor growth! There is still a tumor there (no change in appearance from the other MRIs), but it is very good that it hasn’t grown.

We had a lot of fun with David on the drive. He has lost a couple of pounds, so we splurged and had pizza on Sunday night. He is eating very well, and some of the weight loss may just be due to giving up ice cream for Lent. (Austin gave up dinner rolls.)

We drove back from Pittsburgh and spent the night in VA before taking off to Wichita for company meetings. It was nice to be home, even if it was only for a short visit.

The kids are spending spring break with their father this year, so Richard and I will be taking part of the “birthday” trip we cancelled when David went into the hospital.

We are very excited about the Accelerate Brain Cancer Cure walk in DC on May 1st. A big group of SSBTRVA kids are going up to volunteer. It will be a learning experience for them… And me! I’ve got a lot of experience with events, but at 10,000 participants, this is a whole different level! I’ll let you know how it goes.

In the meanwhile, keep up those prayers. We feel their positive influence every day! I apologize again for the delayed posting this week. And, please feel free to send me a friend request on Facebook if you would like more timely updates.

Prom #1


David went to his first prom last night. He went with his good friend, Catherine, to her prom. They had such a good time, and we were able to share in it a little bit thanks to some unpredictable weather. There was a chance of tornadoes/flooding so we drove them to the dance. They were surprisingly ok with having the adults chauffeur them around.  While they were at the dance, Richard and I were able to spend some time just hanging out with Austin. She took us to a new frozen yogurt place called “Crave”. She really likes the selection of yogurts and toppings there, and I appreciated that there was a good selection of fresh fruit to top the frozen yogurt with. After yogurt, the three of us went to see the movie “Arthur”. I never got around to watching the original version, but this one was quite cute. Not hilarious, but definitely entertaining, with some good messages for parents and kids. So, here are some of the messages I got from the movie:

1. Children need their “real” parents to love and care for them.

2. In the absence of parents who care, other adults can form the same kind of parental bonds and give the love a child needs.

3. Love isn’t a substitute for discipline, and in order to be a healthy, productive adult, children need both love and discipline.

4. Nurturing someone is one of the best ways of showing love.

5. You can have all the money in the world and still be miserable.

6. Having the right outlook will get you farther than having money.

7. What matters the most is having people you love who you can share your life with.

Not too shabby for a Russell Brand movie, right?

We dropped Austin off at her dad’s house this morning, and headed off to Pittsburgh for David’s next treatment. It’s hard having to cut our weekend short with Austin, but we are grateful for the extra time to spend with David. He will get an MRI tonight as part of his regular treatment schedule. We will get the results tomorrow, so I’ll make sure to post and let everyone know how he is doing. Thanks for your continued prayers!

Vaccine #5


David had his 5th vaccine yesterday. He drove to Pittsburgh with Mark, and Richard and I met them at the hospital. The doctor seemed very pleased with how well David is tolerating the vaccine. He didn’t have an MRI this visit, but his neurological checks were excellent. He still has some short-term memory issues, and some minor fatigue, but overall we are so thankful for how good he is doing.

His doctor also felt that he was ok to resume “normal” activities. He can ride roller coasters and go skiing again. She was even ok with him playing soccer as long as he promised not to “head” the ball. David was most excited about the roller coasters, so I’m sure he’ll be asking to visit some amusement parks soon.

I was going through some of my research this morning, reading what other patients are dealing with, and I wanted to share with all of you that I am so confidant that God has already worked a miracle for David. Please don’t misunderstand. We are not done with this battle. Not by a long shot. But David has already been so blessed, and by extension, so have we. We don’t know how to cure this type of tumor, but every day gets us a little closer to learn how to fight it. Research is making huge strides, but for many people it comes too late. We pray that we can keep David healthy and happy long enough to find a way to beat this cancer for good.

I have shared with you that David is on an organic diet, and I encourage everyone to try to incorporate as much organic food as you can into your diet, and especially into the diet of your children. It seems to be especially important with dairy products and meats. There is a great book, “Foods That Fight Cancer” that I highly recommend:

It has a lot of pictures and is pretty easy to get through, even though there is a LOT of science if you are into that.

Thank you for your continued prayers. Please keep ’em coming! We know that is making a huge difference!