David rode to the hospital with his dad. I met them there for the 9:30 am appointment, and David said that he wasn’t feeling very good. He was complaining of being achy and his leg pain was bothering him. We are still hoping the leg pain is an after effect of the tumor there, and that it will go away as the radiation effects continue to work on that tumor. David seemed tired, but not as bad as he has been in the last several days.
His friend, Katie, came into clinic and he pepped up a little bit. Katie is being admitted today for her round of chemo. Her parents say she is doing well, and hopefully, she will be done with treatment soon.
After about an hour, they took David back to a treatment room. There was a Nintendo 64 in the room, and he immediately picked out a game to play. It’s been quite a while since he played on that system, so it was a little bit of a challenge again.
The hospital didn’t have record of the labs that had been drawn on Thursday, so they were about to draw labs again when we asked them to check for those results. The nurse was able to track down the results, and they ordered the chemo at about 11am. I found this kind of ironic because getting the labs drawn ahead of time is supposed to save us about an hour and we had already been waiting an hour and a half. So, after they look at the bloodwork, it takes “about an hour” to get the chemo ordered and up to the lab. Those video games really come in handy.
The nurse told David she would wait a while before starting his IV so he wouldn’t have to deal with it for as long. So he happily kept playing his video games. He started feeling bad, so he tried to lay down, but that made it worse. He ended up throwing up a couple of times, and then said he felt much better. Mark had stepped out of the room for a minute, so he missed all the “fun”. Once his dad got back, I went down and got him a bagel while his dad sat with him.
I came back up to find only Mark in the room – no David. Mark pointed me down the hall, where David was hanging out in Katie’s room talking with her and her parents. He came down the hall and ate half the bagel and started feeling better. Katie came in and the nurse came and put David’s IV in. Then David and Katie played video games for a while. Then they moved us to a big room they call the “fish bowl”. It’s a multi-patient treatment room, and it is painted with lots of fish. So you really do feel like you are in a fish bowl. Katie didn’t stay too long before they admitted her to the hospital. (That’s what she was waiting for. Her treatment is more involved than David’s.)
We sat in there for about half an hour before they finally started his Carboplatin drip. Mark asked me if I would like to drive David home, which of course I did, so he left after they got the infusion started. David played video games for about 10 more minutes and then he went to sleep. They gave him Benedryl before the infusion, and it was doing it’s thing. He slept peacefully through the entire Carbo infusion. The nurse came back and switched the bags. They checked his ID badge to verify his identity, but he slept through switching the bags. He slept through the Avastin and was pretty groggy even when they woke him to tell him it was all over.
He had only eaten half a bagel all day, so we headed for food after we left the hospital. The parking garage was crazy, though, so it was nearly 5pm when we left the premises. We finally made it to Panera, where David took a big sniff and decided to go to Chipotle. He ate a little bit of that, and then decided that Panera sounded good after all. So we got soup. But he decided that he needed a milkshake to settle his stomach before he could eat the soup. :o)
So, we found a Chick-fil-a and got milkshakes. And then he did actually eat his soup. And drank a little of the milkshake. Success! He hasn’t been eating very well, so I was very happy to accommodate his cravings. He joked and said he felt like he was pregnant. The cravings are sort of similar, so we had a good laugh over that.
It may sound like a little thing, but driving him home was a pretty big deal to me. My time with him is so short, and lately, he has been sleeping through just about everything. The fact that he was awake and talking – even joking – was a real gift. I miss being with him and Austin every day. Being teenagers, they are both way more concerned about seeing their friends than their parents, but parents don’t really feel that way. If you are lucky enough to see your kids every day, I hope that you can appreciate what a gift that is. It is more precious than I can possibly tell you.