Who Needs Sleep?

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Me. Lol, but instead I’m writing this way-overdue blog post. Thanks for waiting patiently! I’m so far behind, I’m not sure where to start, so this may be a little random. I’ll try to go chronologically – starting from the last post – and also by subject. So let’s start with the obvious health stuff.

We did take David up the NIH, and he saw an oncologist in their brain tumor clinic. David’s normal doctor, Dr. Fine, was out, and we didn’t want to wait the 2 weeks until he is back in clinic. They were not confidant that David’s tumor(s) have grown during this treatment period. That’s a little confusing. They didn’t say that the tumor(s) hadn’t grown. They thought that there had been too much time between the “starting” MRI and when treatment started, and that you couldn’t decisively say that the growth, which is slight, hadn’t happened in the time between the MRI and when David started chemo. They wanted their entire tumor board to review David’s case, so that will be happening tomorrow (Tuesday). For the moment, David is “just” on his seizure meds, a steroid, pain meds (which aren’t needed in large doses), and stuff to help his stomach handle all of the other meds.

We, of course, had to stop at Mike’s All American Grill on the way back to Fredericksburg. We missed Austin’s tennis match, but she won! She’s getting to be quite good, and her matches are fun to watch. It was getting kind of late, so David spent the night with us. The next day was not a great one. David had a headache and was pretty light and sound sensitive. He went back over to his dad’s and rested most of the afternoon/evening. He was feeling much better by Friday, which was the day of the Spotless Mind concert, so Austin and David met us at the apartment to get everything together. We took separate cars to the concert so David could leave early if he wasn’t feeling well. Psh. He was the life of the party until the end of the night! We saw so many of the kids friends there, and some dear friends of ours came as well. Even had a friend drive an hour and a half to be there! What a blessing they all are! We also made some new friends that night, and everyone –  despite their own challenges, found ways to support the cause.

There were a couple of snags with the concert, but again, friends stepped in to help, and it turned out to be a big success. They raised over $1,000 and are so excited to do more. Most of the talent have Facebook pages and YouTube videos. Here’s a couple if you are interested:

Rebecca Simpson

Allie Wheeland

Monday Morning Hiatus

Serenade the Cityscape

Quite a lot of talent who donated their time to help the cause. Most of them are classmates and friends of the kids in Spotless Mind, a few of them are active group members, and I’m pretty sure a couple of them had never heard of us before. But they all willingly played the show for free so that we could raise money for brain cancer research. They are awesome, awesome kids, so please give ’em a listen if you have a chance. And go like the Spotless Mind page on Facebook if you want to know more about what they are doing. We will be ordering t-shirts soon, and they have a cool Hunger Games tie-in.

We were all pretty beat after the concert, but we did have a nice weekend with David and Austin. Saturday, Austin and I went shopping for bedding for her and David for the new apartment, and we also got her a new tennis outfit and tennis shoes. We watched a movie at home and had a fairly early night. Sunday, we all went out and picked out stuff for the kids’ bathroom and David went to the movies with Cat and Brian. Austin went back to her dad’s to get the last of her homework done and get ready for school. David is staying with me for the week, so he and his friends came back to the apartment and hung out for a while. It’s so good having them around. :o)

David did some schoolwork today and he has his tutor tomorrow. He is at school for a few classes a week, but he still isn’t back for a full day. He is making great progress, though, and is still enjoying *most* of his schoolwork.

Thanks go out this week to Teresa, who rearranged her family’s schedule to accommodate us when we needed some help. There isn’t a day that goes by that we aren’t reminded of how blessed we are. Yes, cancer sucks. Nothing will change that. But friends and family empower us in the fight, and we won’t put our hands up in surrender.

 

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