I believe it is the Marine Corps that says, “There are no easy days.” They know what they are talking about. They are either at war or preparing for war. Sometimes it feels that way when you are the parent of a child with cancer. Or when you have lost your child to that disease. There are no easy days.
Yesterday, I watched in awe as my friend, Vashni Nilon, came to a 5k without her sweet daughter, Lucy. She came because they had been building this team for months, and even though Lucy died just a few days ago, Vashni knows this battle is not over.
This team of walkers grew from about 20 to about 150 because of the efforts of two moms and a dedicated staff. There were doctors and hospital staff sprinkled throughout the crowd. Everyone doing their best to make a difference.
One doctor shared with me that he had been up by 4:30 am each day this week so he could work on grant proposals before heading to the hospital. Another’s wife mentioned that not only does he respond to patient needs in the middle of the night, but also was on call for lab equipment failures. (Tumor tissue samples are precious and he takes personal responsibility for their safety.)
A staff member shared that her kids are “regulars” at the hospital because she has been working 7 days a week. There is no lack of passion here, but yet our children are still dying.
So what do they say they need? More computational power. More data storage. More manpower to input the records. What does that really mean? More funding.
We are in a day and age where computational analytics could be a powerful tool, but most researchers don’t really have access to that kind of power. Dragon Master Foundation aims to change that, but we need your help.
We need a nationwide effort to raise money for a research database. There are currently four leading children’s hospitals participating, and we want to add more! Please get involved today, and help us give everyone hope for easier days.
You can make a tax deductible donation to Dragon Master Foundation by clicking here: http://www.dragonmasterfoundation.org/get-involved/#donate
Or by mailing a check to:
Dragon Master Foundation
8201 East 34th Street N., #801
Wichita KS 67226