Let me just start this post by saying I just got bad news. I’ve come to know a family very well through their son’s GBM battle, and I just found out they are sending him home on hospice. No more options. He’s just a little boy. His Caring Bridge page has a rocket ship. He likes Legos and Star Wars. And they don’t have any other treatments for him. He is struggling to breathe, as many warriors do, because the tumor is pressing on critical parts of his brain. I’ve sat beside my son’s bed and watched that all happen. I’m horrified that they will have to do the same.
With each new family I meet, I think to myself, “I hope this is the one we save.” And I believe each time that it might be that person. That dad, that daughter. When I express my frustration in the timeline to those around me, they are always quick to say, “but look how far you’ve come!” That may be true, but it isn’t far enough, fast enough. We’ve made amazing headway. But it isn’t saving Jack.
When I post on Facebook or Twitter about these kids, people are quick to offer prayer. They are even quicker to send a birthday card or gift to the sick child. That gives peace for a moment, but I want more. I want the same kind of action and passion toward curing these warriors so that we don’t feel the need to make their birthday special because it is probably their last. Which brings me around to my question. Is empathy better than apathy? Are we really helping anyone by feeling sorry for them? When you read those stories and posts and think, “oh how sad”, does it incite you to action?
Today I read some of the comments on VP Biden’s Cancer Moonshot post. At that time, there had only been 125 people who had shared their cancer stories. My story is near the top with only 10 likes. Are you kidding me?!? The Vice President of our country is finally making cancer research an issue and only 125 people could be bothered to respond? I get that not everyone likes to write about that stuff, but everyone could go click like on a story that resonates with them. Is cancer research important to you or not?
I’ll be perfectly honest. Six years ago it wasn’t a priority for me. I thought most cancers were curable, and that the ones that weren’t were extremely rare. I was wrong. Cancer is still a devastating disease that takes many forms – quite a few of which are virtually untreatable. Oh, they will do some form of treatment for everyone, but in cases like brain cancer, they know it most likely won’t do much good. May God bless the folks who go through these treatments knowing it may not help them, but it might help someone else down the road. David did that. And that’s why I am so passionate about this. If I had gotten passionate about it 10 years ago, maybe we could have saved him. But I’ll be damned if I sit by and let other people die when I know that science is capable of better treatments, and yes, maybe even cures.
When I was reading those posts, several people asked what they could do. No one had responded to them, so I did. I told them to volunteer with groups who are looking to change the status quo. Post on social media in support of those groups, and financially support them whenever you can. If we want change, we have to make it happen. Today the bad news went to Jack’s family. It could be anyone else tomorrow. Seven more children will be diagnosed tomorrow. Three of them will lose their battles. Every day. To me, that means we have absolutely no time to lose. What does it mean to you?