I sat with a family today. People think that I do that a lot, but I don’t. Mostly I don’t because the families we help are spread far and wide. But the other reason I don’t is because it is hard. It is really, freaking hard to go sit in a hospital room and act like the world somehow makes sense.
Whenever I have the opportunity and muster the coverage, I’m equally terrified and honored. It triggers every bad memory I have, but I feel so honored that I am even a blip on this person’s journey.
Today, the journey is for a six year old. He is beautiful. I mean, he is cute, but there is something about his spirit that is just beautiful. His mom is open and honest and it tore my heart to shreds. It is 2018, and we have only inched forward with research progress since David died. I truly believed we would be saving lives by now, but we aren’t. We just aren’t.
I feel the shifts underfoot. I can see the change on the horizon. But it isn’t coming in time for this family today. And that is heartbreaking. And I’m asking you, please, if you want to help speed cancer research, STOP DOING THINGS THE SAME WAY!!!
Innovation is coming from collaborative science, and that is NOT what most institutions are funding. Please don’t just blindly make a donation. Your money has power!! Even if it is only $5, it has a voice! Your donation is a vote, and we need more people to pay attention. Vote for what matters.
We have 17 hospitals who are sharing data, but the funding for the sharing doesn’t come from those hospitals. It comes from foundations like Dragon Master Foundation. It comes from passionate people like you, who are tired of the marketing hype and want to see results. It comes from people like me who work daily to bring about this change.
We might not get answers in time for this child. That is not ok. We need your help to do better.
P.S. I don’t really have a polished ending for this. This isn’t a marketing piece. It’s my blog, where I try to give you a real glimpse of life in brain tumor world. Sometimes it’s just raw.